A NEW YEARS EVE UPHILL STRUGGLE SUPPORTING UPHILL STRUGGLERS

Big Skin thanks to EPGI

Thank you to EPGI who supported Hungtingtons Research one New Years Eve 2011/2012 in Verbier.

http://www.hda.org.uk/huntingtons/what-is-hd.php

A little about Huntingtons

Huntington’s has been described as the most disastrous disease known to man because of its peculiarly cruel characteristics. It progressively strips a person of control of his muscles, reason and emotions—though not necessarily in that order. It is caused by a mutation in a single gene, and if you have the mutation, you will develop the disease; the only unknown is when. Typically the first symptoms appear between the ages of 30 and 50, so many people pass the disease on before discovering they have it. The risk of inheriting it from an affected parent is one in two. The unlucky offspring therefore get to watch their sick parent head into a long, slow decline, knowing that the same fate awaits them. And there’s no cure.

ON THE scale of nasty diseases –

conditions you really, really don’t want to get – Huntington’s Disease is off the graph.

It’s on a chart of its own: indeed, for an illness so traumatising for sufferers and those around them, nasty doesn’t really cover It can be more properly described as evil.

What is it exactly? It used to be called Huntington’s Chorea. Chorea was once a common medical reference to the shaking, uncontrollable movements of people with various motor neurone disorders.

An insight into Huntingtons from Charles

Please view Charles Sabines short video to try and help us all understand how lucky we are to appreciate good health which ultimately enables us all to help those not so lucky

http://www.youtube.com/watch?v=e7Ub8DcJxyg&feature=channel